Home Monitoring in Patients with Hypoplastic Left Heart Syndrome: A Literature Review
Brittany R. Abernathy
Background and Significance: Prolonged hospitalization in patients with hypoplastic left heart syndrome (HLHS) leads to potential development of hospitalacquired infections, decreased bonding time with parents, and developmental regression. Research studies have revealed several benefits of initiating home monitoring programs by decreasing mortality in the interstage period for patients with HLHS and improving overall patient outcomes.
Problem and Purpose: Inconsistencies in initiating at-home monitoring protocols leads to potential for increased mortality between palliative surgeries. The purpose of this article is to review the literature and evaluate the evidence regarding the impact of home monitoring on the mortality rate for patients with HLHS and to evaluate the psychosocial impacts it has on families of patients with HLHS.
Method: PubMed, Embase, and CINAHL databases were searched to review the literature. Articles were excluded that were dated older than 15 years, written in languages other than English, and those with non-human subjects. Only articles discussing infants from birth through age 23 months were used. Combinations of key words "hypoplastic left heart syndrome," "single ventricle," "interstage period," "Norwood procedure," "home monitoring," "home nursing," and "home care services" were used.
Results: Initiation of at-home monitoring programs were safe and cost-effective, decreasing morbidity and mortality during the interstage period.
Conclusion: The literature review demonstrated that at-home monitoring programs decrease mortality. Further work is necessary in evaluating parental stress, community involvement, and optimal discharge education.