Lost in Transition: The Importance of Transition Protocols for Pediatric Patients With Cystic Fibrosis
Emily L. McWilliams
Children and adolescents with cystic fibrosis (CF) may experience chronic respiratory, gastrointestinal, endocrine, and psychosocial challenges, as well as complications that arise with an acute exacerbation. In addition to the conventional challenges that adolescents without chronic illness face, patients with CF have added layers of stress surrounding the transition from pediatric to adult care. The focus of this stress is typically on a loss of continuity in their care providers, the expectation that the primary management will shift from parent to patient, and how implementing this outside of a structured transition protocol may impact outcomes. Nurses and other members of the interprofessional team have the potential to play a key role in supporting these patients prior to, during, and after their transition to adult care.